Monday, July 19, 2010

Foldover Bookmark









I have been tatting madly lately. Trying to cope with the stress. And what better pattern to do a gazillion time that the Foldover Bookmark by Jon Yussuf. I really love this design. Heck, I already have almost a dozen of them in different colors! It's so easy to make that after the first one I knew the pattern by memory. :-)














Here is the bookmark folded. The purpose of the bookmark is for people that doesn't like tassels on their books. So the bookmark has 2 pieces. You place one piece on the page that you want to mark and the other piece a few pages after.




















I noticed that the design can make a very pretty bracelet. Just adding an extra short piece to the other side. Isn't it cute? BTW... The thread is Lizbeth #20 in Wildflowers. I just fall in love with this color! Almost finishing the ball, so I will need to buy a couple more. lol

Thursday, July 15, 2010

Sorry I asked... But don't judge me either.

It seems that me asking for help with donations toward my bariatric surgery has risen a polemic and drama that I really don't want. It has mixed with the fact that I'm asking a membership of $10 annually toward the payment of the group at NING for the Spanish-speaking Tatters.

Let me explain first about the Ning money. When Ning decided to ask for the network creator a quote for the use of Ning, I looked for alternative in about a dozen of places. None of them worked as good as Ning and the members in consensus opt to pay the membership of $10 annually to keep the network and all the applications that it has, specially the storage space. There are some people that have problem paying the membership and in each case I have say, it's ok to stay in the group. Even other members have given more than their share of money to help others to stay. Members that can't pay for whatever reason will be able to stay in the group with limited participation. Now, people that are protesting about the money is because $10 per member, and the group have over 1000 members, will give me a lot of money and I'll be rich! But what they don't see is that not all of those members are active, there are people that enter once or twice to see what's in the group and then don't enter anymore. There are people that enter to "steal" material, patterns and photos. So doing a cleaning of all those the group will be greatly reduce to around 100-150 members. Still a lot of money? Well, the rest of the money will be used on the group anyway. The web site has a maintenance around $100 per year. There are contests that will receive material prizes. There will be a better classroom for the online classes. And what if I want to ask for some money for the time I dedicate to the searching of material, translations, designing and classes... Is that bad? Should I give all my time for free? Unfortunately I can't because I don't work and don't have a salary, only a pension which half of it is spent in medicines. Even members have suggested that I could use some of that money to travel and give classes in other countries, something I won't do if this will bring more flame and drama.

Now, about my bariatric surgery. I asked some help because I really need the surgery, not for cosmetic reasons but for my serious health condition. I don't like to talk a lot about it because it's depressing and some people don't like to hear this kind of things because they have their own problems. But I will say it. Yes, my health is very bad, is deteriorating each day more and there's no cure for it. The bariatric surgery will help to diminish some of the secondary health problems, but it will not CURE my Lupus or Asthma. I found some help toward the surgery and that's really good, but still I will need to fund some deductibles and expenses that right now I don't have money and will never have, to be sincere. And I"m not asking money for nothing on exchange. I placed my links to 2 of my online shops. You can buy whatever you want. If you don't want to buy anything but will like to make a donation, fine! I'll appreciate it enormously. I'm not forcing people to buy and make donations!

Saying all this... I have been call a fraud and make me look like all I'm asking is money for my selfish self. That hurts a lot! All my life I have to fight to stay alive, achieve a lot of things that people get for granted. Seven years ago I started this movement to promote Tatting in Spanish. I started translating WITH permissions, materials and patterns. Started the online class in Spanish. Designed a lot of patterns and made a lot of projects, just so that people learned this art. What I gain from this? Stealing of my patterns and translations, illegal publishing of material in my website and group. Tons of fights with my family about the time I spent in the freaking computer and tatting, forgetting a lot of time to do my chores.

So I won't allow ANYONE to call me a fraud! Just because I'm asking some money to help myself to get better health and so I can continue teaching tatting. You don't know all the sacrifices, tears, stress and anxieties I have been through in my life. All the close calls that even my family thought "this is it, the end of Wally's life". Don't judge me because I asked for $10 annually so you can learn an art that anywhere will cost you a lot more! And as I said at the end of the last post. PRAYERS are also very well received.

Sorry I asked for money. I just wanted to get better.

Thursday, July 8, 2010

Can you help me achieve my dream?

I have been talking a lot about my plans for Bariatric Surgery. This is something I need to help my health, it's not purely cosmetic. Several of my doctors have recommended it and even went to my 1st evaluation but I can't make it here in PR. I was looking several options and I receive answer from West Penn Hospital in Pittsburgh, PA. Medicare covers the surgery and my secondary insurance covers Medicare's deductible. But for transportation, stay and special diet I will need around $2000. From those I need $500 at the end of August for the 1st evaluation (ticket, stay and food).

Before I start reading comments about diet, supplement and miracle cures, let me just say this. I have Lupus and actually is active. I have been visiting professional nutritionists for years and though I loose some pounds, I regain them again because of some medicines I take. I can't take natural supplements that boost the immune system because that's exactly the problem with Lupus. My immune system is over reactive and things like that make it worst. And to end, there's no miracle food, ,diet or nothing that will cure you or make you loose all the weight miraculously. In my case the last resort is surgery after a lot of alternative that my own doctors have tried with me. This is not only surgery, but a total change in my lifestyle, thus I have a medical team of 8 doctors, including surgeon, hematologist, nutritionists, psychiatrist, physical therapist, etc. Even a spiritual counselor.

I really don't like to keep asking people for money. But because I can't work in a regular job, all I can do is tat and see if people buy some of my work.

Can you help me? Prayers and donations are greatly accepted!



By buying at:
Artfire
BeautiControl
Or making a donation to Pay Pal






Tuesday, July 6, 2010

What to do? Here, there or Yonder?...

At last, after almost a month of trying to talk to the coordinator of the bariatric center where I made my initial evaluation I was able to talk with her. I told her about my nasty phone call with the dr's secretary that told me that the Hospital do accept Medicare but the dr not yet and there's not a definitive date for it. I have been waiting for an appointment for over 1 1/2 years. I can't stay any more in this limbo. My husband is in Egypt and though he supports me 100%, he's starting to be anxious of when I'll be traveling back to Egypt.

So, the coordinator told me that yes, the hospital part of the surgery is covered by Medicare but not the surgeon's fee. I asked if my secondary insurance can pay for the dr and she tld me that she doesn't know. So now I have to try to get an appointment with the dr to talk about this. *sigh* All this have left me broken.

Now, I found several drs online and I will be calling a dr in SC. I will be traveling to Columbia, SC in August 25 for a Lace Convention, so I thought that I can travel a few days before or stay a few days more and go to a seminar. I will try to call tomorrow to be sure about the seminar dates.

Now I feel like the song that says "Should I stay or Should I go". Here or there? There are a few details like extra money for the extra stay if I decide to do it on SC, or the eternal waiting here in PR until I get an answer.

I hate to make this kind of decisions!

Tuesday, June 29, 2010

Moving to Miami

I will probably move to Miami, FL because there's a hospital there that make the bariatric surgery with Medicare. I got tire of waiting here in PR and at last they told me that my dr is not yet affiliated to Medicare, so they won't make any surgery with Medicare yet. But they don't have an idea of when this could be possible. So I started looking on the net for drs. and found severals. Up to now I got an answer from the Miami HOPE Center and I think I'll start the process with them. Now to find apartment into my money range. That's another story. *sigh*

I signed with BeautiControl a few months ago and though I made it for personal use I think I can make some money selling the products. This will help GREATLY into the moving to Miami. So if you can lend me a few minutes and check my page I'll appreciate!

Tuesday, June 22, 2010

Tatting on Car

I haven't been around a lot because of the pains I have been suffering for almost 2 months. But thanks God and my dr the pain are less and I was able to go out with my family just to drive around the interior of the island. I think we drove like 2 hours without stopping and I started to get bore because I didn't bring with me my tatting bag. So I took some curly ribbons from a gift someone made to my sister Letty and I started finger-tatting a very simple heart.















But what would I do to help with the joining? I asked mom if she had a toothpiker and she found one and it worked like a charm! I was able to make the joins.
















Here is the finished heart. Tatting with curly ribbon is interesting but I don't like how the picots look like and it was difficult to manage the tension of the stitches. But anyway I spend a few minutes without boreness. :-)
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Wednesday, June 9, 2010

APS Awareness Day

I know that this is not about tatting but as a SLE (Lupus) patient and now possible APS patient I think is good to raise awareness about these almost unknown diseases that don't have a cure.


What is Antiphospholipid Antibody Syndrome (APS)? APS is associated with recurrent clotting events (thrombosis) including premature stroke, repeated miscarriages, phlebitis, venous thrombosis (clot in the vein) and pulmonary thromboembolism (blockage of an artery found in the lung due to a clot that has traveled from a vein). It is also associated with low platelet or blood elements that prevent bleeding. Recently, however, even more disease states have been linked with APL including premature heart attack, migraine headaches, various cardiac valvular abnormalities, skin lesions, abnormal movement/chorea, diseases that mimic multiple sclerosis, vascular diseases of the eye that can lead to visual loss and blindness.

APS is an autoimmune disorder in which the body recognizes certain normal components of blood and/or cell membranes as foreign substances and produces antibodies against them. There are two known forms of APS. APS may occur in people with systemic lupus erythematosus, other autoimmune disease, or in otherwise healthy individuals. Sadly, when most people hear about APS and it being referred to as autoimmune disease, they incorrectly confuse the terms autoimmune with acquired immune deficiency syndrome (AIDS); or they think this is a form of cancer.

Women are more likely than men to be affected by APS. Some estimates say that 75% to 90% of those affected are women. For example, it has been estimated by some doctors that one third of all of young strokes (defined as under the age of 50) are due to APS.

In obstetrics it is estimated by some doctors that up to 25% of all women with 2 or more spontaneous miscarriages have APS. Some doctors believe that 1 in 5 of all Deep Vein Thrombosis (DVT), Pulmonary Embolism (PE), and even worse, amputations are due to APS. And it is believed that 40-50% of patients with Lupus also have APS. Still, with these statistics, APS rarely is discussed as a women’s health issue and is misdiagnosed often. Therefore the total number of people affected and true statistics are unknown really.

APS is also referred to as APLS or APLA in the United States and Hughes Syndrome or Sticky Blood in the UK.

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